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Reference and support network – Instituto Reconvexo

Reference and support network

mapa do PA

Belem

REDE SARAH DE HOSPITAIS DE REABILITAÇÃO
Rodovia Arthur Bernardes, 1000
Val de Canz
Belém - PA
Zip code: 66115-000
Phone number: (91) 3205-6700

Belo Horizonte

REDE SARAH DE HOSPITAIS DE REABILITAÇÃO
Belo Horizonte - MG
Phone number: +5531 3379-2600

Brasília

SARAH BRASÍLIA
SMHS 501 Bloco A
Brasília - DF
Zip code: 70335-901
Phone number: (61) 3319-1111
Visiting hours: Mon to Fri from 4 p.m. to 7 p.m. Sat, Sun, and holidays from 3 p.m. to 6 p.m.

Brasília - Lago Norte

SARAH BRASÍLIA - LAGO NORTE
SHIN QL 13 - Área Especial C
Lago Norte
Brasília - DF
Zip code: 71535-005
Phone number: (61) 3319-1111

Fortaleza

SARAH FORTALEZA
Av. Presidente Juscelino Kubitschek, 4500
Passaré
Fortaleza - CE
Zip code: 60861-634
Phone number: (85) 3499-4999
Visiting hours: Mon to Fri - 4 p.m. to 6.30 p.m. Sat, Sun, and holidays - 3 p.m. to 6 p.m.

mapa do AM

Macapá

SARAH MACAPÁ
SETOR 12,
Rodovia Juscelino Kubitschek, 2011 Universidade
Macapá - AP
Zip code: 68903-419
Phone number: (96) 3312-7000

mapa do RJ

Rio de Janeiro

SARAH RIO DE JANEIRO
Av. Canal Arroio Pavuna, s/n Jacarepaguá
Rio de Janeiro - RJ
Zip code: 22775-020
Phone number: (21) 3543-7000

mapa da BA

Salvador

SARAH SALVADOR
Av. Tancredo Neves, 2782,
Caminho das Árvores
Salvador - BA
Zip code: 41820-900
Phone number: (71) 3206-3333
Visiting hours: Mon to Fri - 4 p.m. to 6 p.m. Sat, Sun, and holidays - 3 p.m. to 6 p.m.

Mapa do MA

São Luiz

SARAH SÃO LUÍS
Av. Luís Rocha, s/n
Monte Castelo
São Luís - MA
Zip code: 65035-270
Phone number: (98) 3216-5353
Visiting hours: Mon to Fri - 4 p.m. to 6 p.m. Sat, Sun, and holidays - 3 p.m. to 6 p.m.

mapa de SP

São Paulo​

HOSPITAL SÃO PAULO
Clínica oftalmológica em São Paulo, Brasil
Rua Napoleão de Barros, 715 - Vila Clementino,
São Paulo - SP, 04024-002
Phone number: (11) 5576-4000

HOSPITAL DAS CLÍNICAS DE SÃO PAULO
Av. Dr. Enéas Carvalho de Aguiar, 255
Phone number: (11) 2661-0000

Support groups

Whatsapp group

The community LHON Brasil has created a Whatsapp group to exchange information and to bring people with LHON from every part of Brazil together. To enter the group, send a message to https://chat.whatsapp.com/5XOWlFURyiSGLcaz7oOFmP.

 

Facebook groups

LHON is a rare condition, with little information available even for the medical community. That is why when a person starts presenting the symptoms of LHON, they tend to isolate themselves from conviviality, either for the stigma or for the now present difficulty of performing daily activities. There is even an increase in the practical difficulty due to the lack of information concerning available tools that the person living with LHON has to adapt to the routine of subtle vision loss. In this case, Facebook groups may offer an efficient environment for the exchange of information and experience, allowing the person living with LHON to learn about the available options to better adapt to this phase of visual capability loss. If you are searching for one of them, we suggest the “Leber’s hereditary optic neuropathy (LHON)” group, one of the platform’s biggest global groups, with over four thousand people around the world, considering those affected by LHON, operators, relatives, friends, and other people interested in LHON. It is the best place to share information, make questions, and get involved with LHON’s global community; just click on the Facebook logo below to take part in the conversation.

Moreover, there are other support groups and Facebook groups that might be helpful for people in different countries whose lives were affected by LHON.

YouTube channel - LHON Fortaleza

Facebook groups links

Argentina: Argentina Facebook group

Austria: Germany, Austria, Switzerland Facebook group

Australia: Australia Facebook group e Australian Mitochondrial Disease Foundation (AMDF)

Brasil: Brazil Facebook group

Canada: LHON Canada e Canada Facebook group

Dinamarca: Denmark Facebook group

Finlandia: Finnish Federation of the Visually Impaired (FFVI)Finland Facebook group

França: Ouvrir les Yeux e France Facebook group

Alemanha: Leben mit LHON Facebook group Germany, Austria, Switzerland Facebook group

Italia: Mitocon e Italy Facebook group

Japão: Japan LHON Support group

America Latina: Latin America Facebook group

Holanda: Netherlands Blind Support organization e Netherlands Blind Support organization LHON Facebook group

Filipinas:  Philippines Facebook group

Portugal:  Portugal Facebook group

Espanha:  ASANOL-Spain’s LHON organization e Spain Facebook group

Sweden: LHON Eye Society e Sweden Facebook group

Switzerland: Germany, Austria, Switzerland Facebook group

Turquia: Turkey Facebook group

Reino Unido: LHON Society , LHON Society Facebook group e Scotland Facebook group

There is also a Facebook group specifically for discussing the extraocular symptoms that may be related to LHON: LHON Plus’s Facebook group:
  LHON Plus Facebook group

Another Facebook group specifically for discussing Navigating Education with LHON, for students, students’ parents, teachers, school administrator, or anyone involved with academics and with LHON: 
Navigating Education/School with LHON

There is also a Facebook group only for the mothers of children of any age affected by LHON:
Moms of LHON-Affected “Kids of All Ages”Detalhes

And a similar group only for the fathers of children of any age affected by LHON: 
Dads of LHON-Affected “Kids of All Ages”

Contact

Reconvexo Institute

reconvexo@ireconvexo.com.br

+55 (11) 99547-3306

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