Down below, we have summarized some information, but if you want to learn more about it, check out the article by the U.S. National Library of Medicine, that we have used as a base (access on 24th June 2020.)
In the article below, Leber’s Hereditary Optic Neuropathy – LHON Plus is described as a condition that affects multiple organs. A person living LHON Plus may have symptoms that involve the central nervous system, auditory system, endocrine organs, cardiac system, bone marrow, arteries, kidneys, or the peripheral nervous system.
Learn more about it at: https://www.dovepress.com/leberrsquos-hereditary-optic-neuropathy-is-multiorgan-not-mono-organ-peer-reviewed-fulltext-article-OPTH, access on 24th June 2020.
Since Leber’s Hereditary Optic Neuropathy – LHON Plus is a rare disease, patients may struggle to find doctors who are familiarised with and have experience diagnosing, following-up, and treating it. The search for a diagnosis is often lengthy and may require specialised doctors who are often found only at major research hospitals. A neuro-ophthalmologist may follow-up a person living with LHON Plus, but from a perspective that relates vision problems to the person’s neuro-visual system. Another doctor specialised on, for example, genetic and mitochondrial diseases may follow-up a person living with LHON Plus as well. These experts are usually trained in genetics/biochemistry, neurology, and/or neuromuscular diseases.